-
August 2024 by Matt Miller
Chromosome 18 Registry not only does amazing work, they have become part of our extended family! The service they provide to 18 families is nothing short of stupendous! Keep up the great work Chromosome 18 Registry, you are making a positive difference in the lives of families around the world!
-
August 2024 by Kristy Holder
Life changing!! I don't know what I would do without CH18 Registry & Research Society!! It has truly helped paved a way for our family that is promising through lifelong friendships, education, research and community!!
-
August 2024 by Keri Lamont
As a parent of someone living with a chromosome 18 condition, I have found this organization to be a unique and refreshing resource. After the diagnosis I left alone and lost… and then I discovered the Registry. Over time I got more involved, and I now know the heart (and science)behind this non-profit. Lean in! And support $$!!!
-
August 2024 by Jesse Poggio
C18 gave my family hope and answers when we needed them most
-
August 2024 by Ashley George
Great group of people doing great work locally, and globally! Everyone should get acquainted with this organization.
-
August 2024 by Claudia Traa
The Chromosome 18 Registry is an excellent site for anyone wanting to learn more about individuals born with a chromosome 18 condition. It is a safe and inviting space for families, chock full of information and resources. It is the place to go for doctors, educators, or anyone needing a deeper understanding and appreciation for these individuals and all of the research compiled to date on their behalf.
-
November 2023 by Karen Solomon
This is a great organization and such a great cause in helping our San Antonio community. Neale Parker was great to work with on the golf fundraiser event.
-
October 2023 by Jessica
Chromosome 18 Registry is amazing organization. This is a vital resource and loving community of families and staff, who are there to support you and help you.
-
May 2023 by Meredith Moore
I can’t say enough great things about the team and families! This is an incredible organization raising funds for research and supporting families of individuals with chromosome 18 abnormalities. They are the best!
-
February 2023 by Alexis Garneau
Chromosome 18 gives an abundance of hope and assistance to those affected, and their families. I have worked with members, volunteers, the directors and the CEO. These are caring people that give their time and expertise so willingly. I was fortunate to work with some of the kids at their conferences. What a Blessing!!
-
February 2023 by Randy Web
Great Organization that provides unique services to families with C18. We particularly like the social events in which we meet many people and of course have a great time. It’s one of our favorite organizations!
-
February 2023 by donna paglia
We truly admire the dedication of the Chromosome 18 Registry and Research Society! They help a very specific group of children, and their families, to engage with other families, share their stories, and support each other. They provide resources and a wealth of content to help educate the community and build awareness, while also hosting events to raise money for research. They are making a difference and an impact, and we love supporting their mission for that very reason! ~Donna & Randy H.
-
February 2022 by Sue Bentivenga
What a wonderful organization! I can't thank them enough for their tireless and selfless work researching chromosome 18 disorders, and connecting our families! We felt so alone when my oldest daughter was diagnosed with a chromosome 18 syndrome 20 years ago, but we quickly became a part of this organization, and developed such strong friendships with so many other families going through similar struggles. We are truly honored to be a part of this chromosome 18 "family"!!!
-
July 2021 by Rox McCrea
I've attended some of Chromosome 18's fundraisers & have had the pleasure of meeting the "minds and hearts" who lead this incredible nonprofit. I love supporting this amazing organization!
-
July 2021 by Anaya Patel
Interning with Chromosome 18 was such an amazing and valuable experience! The staff was more than kind and accepting towards all interns, volunteers, and donors, and I got to see firsthand how much they care for their Chromosome 18 families. It was an honor to be part of such as impactful organization and to support Chromosome 18's events.